Collaborators

The Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network (FSHD CTRN) is a consortium of 18 academic research centers (12 in the United States, and 6 in Europe) with expertise in FSHD clinical research, or in conducting neuromuscular clinical trials. These centers leverage existing clinical trials infrastructure including: clinical investigators, research coordinators, study evaluators, and institutional resources like Clinical and Translational Science Research Awards (CTSAs) and local Research Institutes for clinical trial budget and contracting, and Clinical Research Centers, which provide subsidized clinical research space and facilities.

The FSHD CTRN helps close gaps in clinical trial readiness, and also provides a network of sites with a centralized streamlined regulatory process, specific, common expertise in FSHD.

The 18 FSHD CTRN research sites provide opportunity for many FSHD patients around the world to participate in research. For more information, please click this link: https://www.kumc.edu/fshd-clinical-trial-research-network.html

FSHD CTRN Contact:
Kiley Higgs
Project Manager
913-945-9922
ksims2@kumc.edu