Deaf Healthcare Survey
General Information
RPRC:NCDHR has developed the Deaf Healthcare Survey, a computer-based sign language version of the Consumer Assessment of Heathcare Providers and Systems (CAHPS®). CAHPS® is a family of surveys that focus on patients' experiences with healthcare in doctor's offices, hospitals, and other healthcare settings.
The Deaf Healthcare Survey was given in sign language on a touch-screen laptop using the same platform as the RPRC:NCDHR Deaf Health Survey. About 100 deaf adults 18 and older took the survey.
Researchers are now analyzing the data and will share the results in the future through publications and presentations.
Publications
Graybill P, Aggas J, Dean RK, Demers S, Finigan E, Pollard RQ. A community participatory approach to adapting survey items for Deaf individuals and American Sign Language. (Abstract)Field Methods 2010; 22(4); 429-448.
Presentations
Barnett S. Healthcare experiences of deaf sign language users: Adapting CAHPS. Presented at the Agency for Healthcare Research and Quality's (AHRQ's) 5th Annual Conference, Bethesda, MD; 2012.
Mowl C, O'Hearn A, Panko T, Sutter E, and Barnett S. Collecting research data from deaf ASL users: How do we know we're asking the right questions? (Abstract). Presented at the APHA 139th Annual Meeting, Washington DC; 2011, November 2.
Barnett S. Healthcare Experiences of Deaf Sign Language Users: Experiences Adapting a Written English Survey [Abstract (search Barnett, Steven)]. Presented at the North American Primary Care Research Group, Seattle WA; 2010 November 13-17.
Barnett S, Sutter E, and Kushalnagar P. Adapting Patient Outcome Measures (PROMs) for use with Diverse Populations: Experiences with American Sign Language. Presented at the International Society of Quality of Life Research, London, England; 2010 October 27-30.
Barnett S, Schlehofer D, Sutter E. Deaf consumers’ healthcare experiences: The need for an accessible CAHPS®. Presented at the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Users Group Meeting, Baltimore, MD; 2010 April 19-21.
Barnett S. Deaf people and healthcare: Adapting CAHPS® to be accessible for sign language users (Slides). Presented as part of the OEREP Panel Session on Successful Career Development in Health Services Research during the Agency for Healthcare Research & Quality (AHRQ) 2008 Annual Conference: Promoting Quality: Partnering for Change, Bethesda, MD; 2008 Sept 7-10.
Links
More about CAHPS®: https://www.cahps.ahrq.gov/default.asp
This project is supported by grant K08 HS15700 from the Agency for Healthcare Research and Quality (AHRQ).