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Clinical Ethics

URMC / Clinical Ethics / Research and Publications

Research and Publications

  • Larsen, E., Mooney, C., Rodrigues, N., & Shaw, M. H. (2025). The anatomy of ontological ambiguity: exploring moral distress in cadaveric dissection. Advances in health sciences education : theory and practice, 10.1007/s10459-025-10436-5. Advance online publication. https://doi.org/10.1007/s10459-025-10436-5
  • Heffernan, M. E., Barrera, L., Jones, M., Hayes, A., Roldan, M., Wright, M., McGarry, M. E., Ross, L. F., & McColley, S. A. (2025). The Newborn Screening Experience of Caregivers of Children With Cystic Fibrosis in the United States: A Cross-Sectional Survey. Pediatric pulmonology, 60(5), e71110. Https://doi.org/10.1002/ppul.71110
  • Moore B, Herington J, & Tekin Ş, (2025) The Integration of Artificial Intelligence-Powered Psychotherapy Chatbots in Pediatric Care: Scaffold or Substitute?, The Journal of Pediatrics, doi: https://doi.org/10.1016/j.jpeds.2025.114509
  • Moore, B. (2025). Seeing and having seen: On suffering and intersubjectivity. Cambridge Quarterly of Healthcare Ethics, 1–10. https://doi.org/10.1017/s0963180125000064
  • Schlagman, S. (2025). Benjamin’s translation as dialectical abduction: A novel epistemic framework for diagnostic hypothesizing. Theoretical Medicine and Bioethics. https://doi.org/10.1007/s11017-025-09698-2
  • Kilbride, M. K., Peshkin, B. N., Hamilton, J. G., Brower, J., Ovadia, H., Ross, L. F.,…Tercyak, K. P. (2025). Pediatric DTC genetic testing for adult-onset inherited cancer risk: The perspectives of high-risk parents. Public Health Genomics, 1–15. https://doi.org/10.1159/000543913
  • Navin, M. C., Wightman, A. G., & Ross, L. F. (2025). No vaccine, no organ? Ethics of Vaccine Mandates for Pediatric transplant. Pediatric Transplantation, 29(1). https://doi.org/10.1111/petr.70019
  • Penner, S. B., Mercado, N. R., Bernstein, S., Erickson, E., DuBois, M. A., & Dreisbach, C. (2024). Fostering informed consent and shared decision-making in maternity nursing with the Advancement of Artificial Intelligence. MCN: The American Journal of Maternal/Child Nursing. https://doi.org/10.1097/nmc.0000000000001083
  • Wellesley, J., Wilkinson, D., & Moore, B. (2024). Wish to die trying to live: Unwise or incapacitous? the case of University Hospitals Birmingham NHS Foundation Trust versus ‘st.’ Journal of Medical Ethics. https://doi.org/10.1136/jme-2024-110365
  • Alpert, A. B., Babbs, G., Sanaeikia, R., Ellison, J., Hughes, L., Herington, J., & Dembroff, R. (2024). Doing justice: Ethical considerations identifying and researching transgender and gender diverse people in insurance claims data. Journal of Medical Systems, 48(1). https://doi.org/10.1007/s10916-024-02111-w
  • Herington, J., Shand, J., Holden-Wiltse, J., Corbett, A., Dees, R., Ching, C.-L., Shaw, M., Cai, X., & Zand, M. (2024). Investigating Ethical Tradeoffs in Crisis Standards of    Care through Simulation of Ventilator Allocation Protocols. https://doi.org/10.1101/2024.03.10.24304058 
  • Moore, B. (2024). Beyond the hospital walls: The role of the ethicist in Community Healthcare Settings. The Journal of Clinical Ethics, 35(3), 208–216. https://doi.org/10.1086/730876 
  • Moore, B., & Brown, A. C. (2024). Do reasons matter? Navigating parents’ reasons in healthcare decisions for children. PubMed, 1-16. https://doi.org/10.1080/15265161.2024.2388730
  • Herington, J., & Kluger, B. (2024). Parrots at the Bedside: Making Surrogate Decisions with Stochastic Strangers. The American Journal of Bioethics, 24(7), 32–34. https://doi.org/10.1080/15265161.2024.2353803
  • Blumenthal-Barby, J., Fletcher, F. E., Taylor, L., Nelson, R. H., Moore, B., Saloner, B., & Ubel, P. A. (2024). Ethical Complexities in Utilizing Artificial Intelligence for Surrogate Decision Making. The American Journal of Bioethics, 24(7), 1–2. https://doi.org/10.1080/15265161.2024.2362553
  • White, M. H., Ross, L., Gallo, A., & Parker, W. F. (2024). Graft survival of en bloc deceased donor kidneys transplants compared with single kidney transplants. Transplantation. https://doi.org/10.1097/tp.0000000000005058
  • Moore, B. (2024). How A health equity lens can help us rethink quality assessments at the end-of-life. Journal of Pain and Symptom Management. https://doi.org/10.1016/j.jpainsymman.2024.05.021
  • Nelson, R. H., Kious, B., Largent, E., Moore, B., & Blumenthal-Barby, J. (2024). Is Suffering a      Useless Concept? The American Journal of Bioethics, 1–8. https://doi.org/10.1080/15265161.2024.2353799
  • Ross, L. F., & Iltis, A. S. (2024). Medical decision-making for children in families with siblings: Parental discretion and its limits. Perspectives in Biology and Medicine, 67(2), 261–276. https://doi.org/10.1353/pbm.2024.a929022
  • Ross, L. F., Hester, D. M., & Malone, J. R. (2024). Teenage development and parental authority: Applying consensus recommendations to Adolescent Care. Perspectives in Biology and Medicine, 67(2), 227–243. https://doi.org/10.1353/pbm.2024.a929020
  • Salter, E. K., Ross, L. F., & Hester, D. M. (2024). How we found consensus on pediatric decision-making and why it matters. Perspectives in Biology and Medicine, 67(2), 186–196. https://doi.org/10.1353/pbm.2024.a929017
  • Raz, M., Gupta-Kagan, J., & Asnes, A. G. (2024). Disclosure Is an Essential Component of Ethical Practice: JAMA Pediatrics. https://doi.org/10.1001/jamapediatrics.2024.1110 
  • Omelianchuk, A., Capron, A. M., Ross, L. F., Derse, A. R., Bernat, J. L., & Magnus, D. (2024). Neither ethical nor prudent: Why not to choose normothermic regional perfusion. Hastings Center Report. https://doi.org/10.1002/hast.1584 
  • Mercado, N.R. (2024) Can We Be Creative with Communication? Assessing Decision-Making Capacity in an Adult with Selective Mutism. HEC Forum. https://doi.org/10.1007/s10730-024-09523-8
  • Delany, C., Moore, B., Bhatia, N., Burn, E., Wimalasundera, N., & Preisz, A. (2023). Responding to the ‘crowd’ of voices and opinions in the paediatric clinical space: An ethics perspective. Archives of Disease in Childhood. https://doi.org/10.1136/archdischild-2023-326154 
  • Streicher, S., & Shaw, M. (2023). Motherhood As A Vector For Sexism in Treatment Refusal Controversies. Penn Bioethics Journal, XIX(ii), 24–34. https://bioethicsjournal.com/wp-content/uploads/2024/02/Fall-2023-FINAL.pdf
  • Noohi F, Sundaresan MS, Naylor RN, Ross LF. (2023) Investigator and participant expectations for returning non-genetic results: insights from the Rare and Atypical Diabetes Network (RADIANT) study. Journal of Clinical and Translational Science. 2023;7(1):e260. doi:10.1017/cts.2023.684
  • Raz, M. (2024, January 31). Why mandatory reporting doesn’t keep children safe. Time. https://time.com/6589854/mandatory-reporting-child-abuse-prevention/ 
  • Herington, J. & Friedman Ross, L. (2023) Against the Equality of Moral Spheres in Healthcare. The American Journal of Bioethics, 23:12, 23-25, https://doi.org/10.1080/15265161.2023.2273177
  • Herington, J., Connelly, K., & Illes, J. (2023). Ethical imperatives for working with diverse populations in Digital Research. Journal of Medical Internet Research, 25. https://doi.org/10.2196/47884
  • Herington, J., McCradden, M. D., Creel, K., Boellaard, R., Jones, E. C., Jha, A. K., Rahmim, A., Scott, P. J. H., Sunderland, J. J., Wahl, R. L., Zuehlsdorff, S., & Saboury, B. (2023). Ethical considerations for Artificial Intelligence in medical imaging: Data collection, development, and evaluation. Journal of Nuclear Medicine. https://doi.org/10.2967/jnumed.123.266080
  • Raz, M., & Edwards, F. (2023). Termination of Parental Rights Is Common and Should Not Be Seen as a Proxy for Child Abuse. Social work, 69(1), 109–112.  https://doi.org/10.1093/sw/swad047
  • Dorfman D, Raz M, Berger Z. Physicians’ Refusal to Wear Masks to Protect Vulnerable Patients—An Ethical Dilemma for the Medical Profession. JAMA Health Forum. 2023;4(11):e233780. doi:10.1001/jamahealthforum.2023.3780 
  • Raz, M., Gupta-Kagan, J., & Asnes, A. G. (2023). Using Child Abuse Specialists to Reduce Unnecessary Child Protective Services Reports and Investigations. JAMA pediatrics, 10.1001/jamapediatrics.2023.3676. Advance online publication.  https://doi.org/10.1001/jamapediatrics.2023.3676
  • Ross, L. F. (2024) Parents Don’t Know Best in the United Kingdom, The American Journal of Bioethics, 24:1, 103-106, DOI: 10.1080/15265161.2024.2279439
  • Shah, A. D., Williams, W. A., 2nd, & Ross, L. F. (2023). How Race, Ethnicity, and Social Determinants of Health Are Reported in Three European Pediatric Journals. The Journal of pediatrics, 259, 113454. https://doi.org/10.1016/j.jpeds.2023.113454
  • Hasser, E., Peshkin, B. N., Hamilton, J. G., Brower, J., Ovadia, H., Friedman Ross, L., Sacca, R., Tarini, B., Domchek, S. M., Vittone, S., Sleiman, M., Jr, Isaacs, C., Knerr, S., Wilfond, B. S., & Tercyak, K. P. (2023). Measuring high-risk parents' opinions about direct-to-consumer genetic testing for adult-onset inherited cancer syndromes in their adolescent and young adult children. Journal of genetic counseling, 32(4), 768–777. https://doi.org/10.1002/jgc4.1685
  • Edwards, F., Fong, K., Copeland, V., Raz, M., & Dettlaff, A. (2023). Administrative burdens in child welfare systems. RSF: The Russell Sage Foundation Journal of the Social Sciences, 9(5), 214–231. https://doi.org/10.7758/rsf.2023.9.5.09
  • Paul, A., Mercado, N., Block, L., DeVoe, B., Richner, N., & Goldberg, G. R. (2023). Visual thinking strategies for interprofessional education and promoting collaborative competencies. The Clinical Teacher. https://doi.org/10.1111/tct.13644
  • Herington, J., McCradden, M. D., Creel, K., Boellaard, R., Jones, E. C., Jha, A. K., Rahmim, A., Scott, P. J. H., Sunderland, J. J., Wahl, R. L., Zuehlsdorff, S., & Saboury, B. (2023). Ethical considerations for Artificial Intelligence in medical imaging: Deployment and governance. Journal of Nuclear Medicine. https://doi.org/10.2967/jnumed.123.266110