Sample Coordinator Projects

Characterization of a large virtual cohort of LRRK2 carriers in collaboration with 23andMe

The primary objective of this study is to characterize a large virtual cohort of LRRK2 carriers (the most common autosomal dominant cause of PD) in collaboration with 23andMe, a biotechnology company that offers direct-to-consumer genetic testing and conducts its own genetic research.

Assessing Tele-Health Outcomes in Multiyear Extensions of PD trials

Assessing tele-health outcomes as digital biomarkers of Parkinson’s disease progression during extended follow-up of participants from two previous studies, STEADY-PD III and SURE-PD3.

AT-HOME PD Website

Steps Taken, Words Spoken: A Novel Objective Measure of Cognitive Function

The primary objective of this study is to evaluate the feasibility and efficacy of using a wearable recording device to measure verbal fluency in a real-world setting for individuals with early Alzheimer disease, Parkinson disease, mild cognitive impairment (MCI), preclinical Alzheimer disease, and normal cognition.

Development and validation of novel Parkinson disease measures using sensor-based technologies

The primary objective of this study is to assess the correlation between the measurements collected through multiple sensing devices (mPower 2.0 app, wearable sensors, video analytics, and Emerald in-home monitoring) and traditional in-person assessments of Parkinson’s disease.

Wearable Assessments in the Clinic and Home in PD

A multi-center, prospective, longitudinal, digital assessment study of disease progression in subjects with early, untreated Parkinson disease.

WATCH-PD Website

Assessing Health Risks and Outcomes for Attorneys

This study assesses the health risks and outcomes of a group of attorneys in Monroe County in Rochester, NY.

Program delivering specialized Parkinson Disease care remotely

PDCNY is a multi-disciplinary, largely virtual, Parkinson disease care network for New York State. It aims to address barriers to access and improve satisfaction with care, quality of care, patient function, reduce caregiver burden and lower costs through a coordinated telemedicine program.

PDCNY Website

project:brainhealth

A research participation registry that aims to accelerate research to improve the lives of all patients with neurological disorders. Anyone 18+ can register to participate and be notified of studies they are eligible to take part in.

NSIR Website